Psoriasis, a disease still not widely understood, negatively impacts social, personal and professional life. Beyond the struggle to accept one's own body, the patient may wish to hide due to fear of mockery, unkind comments or the judgement of others. Fortunately, support and guidance can be found through organisations such as "France Psoriasis".
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France Psoriasis, an association to accompany and support patients suffering from psoriasis
Summary
- The history of the association, France Psoriasis
- The objectives of "France Psoriasis"
- The support and guidance services
- Source
Published September 22, 2023,
updated on February 19, 2024,
by
Manon, Scientific Editor
—
5 min read
The history of the association, France Psoriasis.
Formerly known as the "Association for the Fight Against Psoriasis", the "France Psoriasis" association was founded in November 1983 by a patient named Michèle CORVEST. At the time, she was 32 years old and had been suffering from psoriasis for 22 years. The founder of the association realised that she was unaware of the various existing therapies. She felt neglected by science. For these reasons, she decided to take control of her disease. To do this, a different psychological approach was adopted, based on the knowledge of the benefits and risks associated with treatments.
Psoriasis is generally perceived by patients as a demeaning or shameful condition. Thus, the work of the "France Psoriasis" association is focused on the means to improve the quality of life of those affected. Since its inception, the association has more than 20,000 patients. It benefits from the advice of a scientific committee, as well as the support of SFR (French Society of Rheumatology) and SFD (French Society of Dermatology).
The objectives of "France Psoriasis".
The association receives numerous testimonials that enable it to fulfil its missions. These are centred around four main axes.
Restoring hope.
Since 1983, "France Psoriasis" has been working to restore hope to patients and their families. To achieve this, all information about the disease and the various treatments offered is made available to them on the association's website: https://francepsoriasis.org/. Throughout France, exchange meetings are organised to support and accompany patients. The association also provides the latest information on psoriasis through a newsletter and a review.
Providing an enhanced skincare journey.
"France Psoriasis" collaborates with authorities and healthcare professionals to limit therapeutic wandering. It intervenes with general practitioners, dermatologists, rheumatologists, nurses, pharmacists...
Raising awareness about psoriasis.
In order to raise awareness among the general public and combat misconceptions, "France Psoriasis" organises communication campaigns. Meetings with the Ministry and petitions also serve to introduce and gain recognition for the disease from political authorities.
Advancing research.
For appropriate management of psoriasis, the association conducts medical-social surveys. It also has the mission to inform about all ongoing clinical trials and to improve the patient journey during these trials.
The support and guidance services.
To assist patients in living with their condition, "France Psoriasis" offers:
A personalised listening service.
Understanding psoriasis, taking appropriate action during flare-ups, changing treatments... Patients are faced with various challenging situations. However, thanks to the association, they can benefit from advice and personalised support by calling 01 42 39 02 55 or by attending drop-in sessions organised throughout France.
The virtual assistant Calipso.
This complimentary service is available on the France Psoriasis website. It addresses patient queries and provides support 24 hours a day. All responses are validated by dermatologists. Furthermore, there is no need to register to converse with Calipso.
The TAVIE Pso application.
This application includes various features, among which are virtual coaching sessions to enhance patient self-management. A diary is available to track the progression of symptoms and side effects of a treatment, to facilitate communication with healthcare professionals.
The magazine PSO MAG.
This journal is published three times a year by the association itself, which enables individuals affected by psoriasis and/or psoriatic arthritis to stay informed about the medical, social, and cultural news related to the disease.
Source
Website of the France Psoriasis Association.
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